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- MakaleAçık Erişim2025Scopus SJRQ1The effects of self-efficacy in managing the disease and disease adaptation levels of Familial Mediterranean Fever (fmf) patients on satisfaction with life: a web-based cross-sectional study
Demir, Rahime Nur; Kiraç, Ramazan; Kiraç, Fatma Çiftçi
Background: Familial Mediterranean Fever (FMF) is an auto inflammatory disease often accompanied by fever and serositis attacks in which peritoneum, pleura, synovium, and rarely pericardium are spared. In the study, the effects of self-efficacy in managing the disease and disease adaptation levels of FMF patients on satisfaction with life were examined. Methods: This observational cross-sectional study was conducted using a web-based questionnaire sent via Facebook and Instagram FMF groups between February 1, 2024 and April 25, 2024. The population of this study consisted of patients diagnosed with FMF at least 1 year ago in Türkiye. Findings: The mean self-efficacy score of FMF patients in managing chronic diseases was found to be 4.67. According to the results of the study, physical adaptation was determined to be the highest adaptation in FMF patients. This is followed by psychological adaptation and social adaptation. In general, the scores the patients obtained regarding disease adaptation and its sub-dimensions were found to be close to the average value. The satisfaction with life scores of the patients were found to be below the average. Conclusion: This study revealed that the self-efficacy and disease adaptation levels of FMF patients in Türkiye affect their satisfaction with life.
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- MakaleAçık Erişim2025Scopus SJRQ1Death anxiety and death literacy among Turkish patients with chronic diseases: a cross-sectional study
Semerci Çakmak, Vahide; Seven, Ahmet; Sönmez Sari, Ebru
Background: Death anxiety is common in patients with chronic diseases. Death literacy is a novel theoretical framework that enables patients to discuss death, accept it as a natural aspect of life, and get a deeper comprehension of it. However, it is unclear whether there is a relationship between death literacy and death anxiety. Furthermore, death literacy has not been sufficiently researched in Turkish society. This study investigated the levels of death anxiety and death literacy among Turkish patients with chronic diseases and the factors affecting death anxiety. Methods: This was a cross-sectional study. The sample consisted of Turkish patients with chronic diseases (n = 225). The data were collected with the Turkish Death Anxiety Scale and the Death Literacy Index. Pearson correlation, independent samples t test, One-Way ANOVA, and multiple linear regression were employed to analyse the data. Results: There exists a negative moderate correlation between death anxiety and death literacy. It has been determined that the factors that most influence patients’ fear of death are their level of death literacy and gender. These factors explained 12.8% of the variance in death anxiety (R2 = 0.128, F = 3.153, p < 0.001). Conclusions: The results suggest that death literacy level and gender were found to be factors affecting death anxiety of patients. Women have higher death anxiety scores. While the level of death literacy of Turkish patients with chronic diseases increases, their death anxiety decreases. The findings of the study were believed to offer a comprehensive information for healthcare practitioners in the management of such patients.
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